Submitted by Dr T on January 3, 2013 – 7:36pm
Your father’s condition appears no longer managible at home. My advice: You need to meet with his doctors and confirm that his present therapy has indeed maxed out. One concern in this repect: his heart function = 35% is usually easily managed by doctors exeprienced in heart failure. Likewise, not all pleural effusions are caused by heart failure. Even then, sometimes simple drainage may be enough to tip the scale back to easier treatment overall. If the effusion proves to be caused by a malignancy that would also change any further treatment plans.
It may therfore be worth a 2nd opinion to confirm this. However, if the final conclusion is that there is no other practical option available (and if possible your father should participate in these discussions), comfort care and preferably, transfer to a hospice (or a facility like it) becomes the next step.
I passed your question and my answer to my daughter, an internist-geriatrician who has had a very different experience with patients than I encountered managing cardio-thoracic surgical patients. Please read her answer below!
I am Dr. T’s daughter, visiting for the holiday, also a physician and an internal medicine doctor with experience in palliative care, geriatrics, and congestive heart failure. When I read Dr. T’s response I told him I thought a different perspective might be useful.
I want to express my sympathy for you and for dad. It is clear he has been struggling, and I’m sure it has been difficult for all of you. It sounds to me as if your father’s disease has progressed (a good sign of that with heart failure is needing to go to the hospital more often within 6 months), and that a reassessment of his goals of care (such as focusing on comfort) could make sense. Certainly a second opinion from a cardiologist is never a bad idea per se (I would certainly make sure a cardiologist on board if not already there), but my guess (with you, I suspect) is that a palliative care consult would be more useful.
Palliative care is a philosophy of care focusing on the care of symptoms of chronic disease, and ANY patient with serious chronic disease should be considered for a palliative care consult. They can help by helping focus on how your dad is FEELING, and treating the symptoms (the shortness of breath, the anxiety, etc), rather than the disease process, and helping you and your dad understand his disease, its prognosis and options for the future. Depending on your father’s goals, these might include continuing the current plan of care (which sounds like frequent doctors’ visits, lots of medications, and lots of hospitalizations) OR deciding to forgo hospitalizations or turning off the AICD, etc, and investigating options such as hospice.
A good palliative care team is an excellent complement to a medical team, and having palliative care on board is often thought to contribute very favorably to a patient’s experience even when getting the most aggressive care (such as chemotherapy). You do not need to be hospice-eligible (that is, with an anticipated lifespan reasonably less than six months) or even to be a comfort-measures-only patient to benefit from palliative care.
Note that (outside of cancer patients) it can be difficult to access palliative care outside of the hospital. If I were you, I would talk about options for palliative care, choosing a less aggressive path of care, etc. with the patient’s primary care doctor and/or the next time your father is the hospital, asking the admitting team to consider a palliative care consult.
I wish you and your father my best wishes in this difficult time,
Dr. L. T, MD
I hope you find these opinions useful, as they provide a different perspective based on our respective backgrounds. Even so, our recommendations were relatively similar!
Hope this helps,